Well, I’ve officially had a change of diagnosis! On Tuesday, I saw my primary care who took the time to call my hospital neurologist and talk to him about my specific symptoms that don’t reflect my Guillain BarrĂ© diagnosis. He agreed with her and sent an urgent referral to an outpatient neurologist that he knows. That office got me in this morning (Friday), which is…
A Month & A Half
Hey all! I wanted to give you an update on how I’m doing, especially for those of you who aren’t at The Bridge to see me regularly. 😊 It’s been one month today since I returned home after a 2 week hospital stay. Things are kind of a mixed bag. On one hand, I’m getting so much stronger, which is amazing! I’m walking with a…
One Month
Today is one month since my life was turned upside-down! I’ve been asked about an update by a few people and I think all I can say is that things are going pretty well. 😁 Today is the second day that I haven’t used my wheelchair once and last night was my second night back in my own bed upstairs. I’m walking with a walker…
Day 27
Well, another week has passed and we’re slowly getting into somewhat of a groove. We resumed school today in hopes of not being so far behind that we have to do school through next summer. 🤷🤣 Last week I had two physical therapy appointments and really like my therapist. She’s cleared me for walking with a walker at home for short distances. 🥳🥳 Walking is…
Day 20
Well, I made it through the weekend! Saturday felt like 2 full days with no sleep in between, but it was worth it to celebrate my 3rd teenager! If anyone is curious, his bar mitzvah was live streamed on our congregation’s YouTube channel (YouTube.com/TheBridgeIdaho). It was a great service and I was probably just as excited to be leading worship again. God is so good.…
Day 17
Good morning, everyone! I’ve been home for 2 days and nights now and feel so much better. Turns out all the pain meds I needed to sleep were mostly because the hospital bed was so bad, not because of my condition. 🤦🤷 Words can’t express how happy I am to be home with my family. 🥰 I’ve been crazy busy, of course. 😉🤣 It feels…
Day 14
Hi everyone! It’s been 2 weeks ago now since my life got turned upside-down and I’m doing so much better! When I’m released tomorrow, I’ll be wheelchair bound, but doing physical and occupational therapy twice a week at a rehab clinic that has a neuro team. There’s no way to know the future, but everyone expects that I’ll likely make a full recovery someday, based…
Day 12
Good morning! I hope you all have been enjoying your weekend – I know I have been. I didn’t have any therapy on Shabbat, and at first I was disappointed. But the truth is that I think I needed the days off more than I realized. Healing requires hard work sometimes, but it also requires rest. 💗 I’m getting stronger though! Every day that goes…
Day 10
Good morning! I didn’t post an update yesterday because now that I’m in rehab things are stabilizing into a routine. There’s not a whole lot to say. 😉😁 I’m doing 3 hours of one-on-one occupational and physical therapy every day, usually broken into chunks. OT is focused on getting me doing normal life things so that I can take care of myself when I leave.…
Day 8
Good morning! One week ago right now I was on my way to meet my friend for breakfast. An hour later I was paralyzed. What a whirlwind things have been since then! It’s a bit surreal to think back at this past week and how bad things got compared to where I am now. 🤯 I’m so thankful for God’s goodness on my heart to…