My Health Journey

Eight Months…A New Normal?

“A New Normal.” I’ve had a special disdain for that phrase ever since it became popularized a few years ago. All of us probably know exactly what I’m talking about. Generally speaking, I refuse to let outside forces dictate to me what I should accept as normal in my own life. I’m pretty stubborn like that. 🙂 But lately I’ve been hearing that phrase in…

My Health Journey

Six Months, Small Victories, & Setbacks

Three steps forward, two steps back. I’ve come to realize that this is a big part of the life of someone with a life-changing diagnosis. Sometimes it can be disheartening, but I’m trying to work on embracing the whole picture and what it means in my daily life. I will reach 6 months post-injury in two days. It’s crazy to think about. I’ve spent half…

My Health Journey

Five Months and Fresh Inspiration

It has been just over five months now, and I just wanted to share something with you. Last week in a transverse myelitis group that I’m in, someone shared a book recommendation for a memoir by a woman named Victoria Arlen, called Locked In: The Will to Survive and the Resolve to Live. At the age of 11, Victoria contracted both Transverse Myelitis and another…

About Me

Four Months: Life with a Spinal Cord Injury

It’s been four months today since God allowed my life to be shaken to its core. Quite literally. 😉 For the most part, things are settling into the semblance of something fairly predictable.  I have constant minor burning pain in my legs. The best way to explain the pain is that burning you feel when your legs get really cold outside for a long time,…

My Health Journey

A New Diagnosis

Well, I’ve officially had a change of diagnosis! On Tuesday, I saw my primary care who took the time to call my hospital neurologist and talk to him about my specific symptoms that don’t reflect my Guillain Barré diagnosis. He agreed with her and sent an urgent referral to an outpatient neurologist that he knows. That office got me in this morning (Friday), which is…