My Health Journey

Six Months, Small Victories, & Setbacks

Three steps forward, two steps back. I’ve come to realize that this is a big part of the life of someone with a life-changing diagnosis. Sometimes it can be disheartening, but I’m trying to work on embracing the whole picture and what it means in my daily life. I will reach 6 months post-injury in two days. It’s crazy to think about. I’ve spent half…

My Health Journey

Five Months and Fresh Inspiration

It has been just over five months now, and I just wanted to share something with you. Last week in a transverse myelitis group that I’m in, someone shared a book recommendation for a memoir by a woman named Victoria Arlen, called Locked In: The Will to Survive and the Resolve to Live. At the age of 11, Victoria contracted both Transverse Myelitis and another…

My Health Journey

A New Diagnosis

Well, I’ve officially had a change of diagnosis! On Tuesday, I saw my primary care who took the time to call my hospital neurologist and talk to him about my specific symptoms that don’t reflect my Guillain BarrĂ© diagnosis. He agreed with her and sent an urgent referral to an outpatient neurologist that he knows. That office got me in this morning (Friday), which is…